Integration of People with Mental Disorder Into Community Based Rehabilitation Model 

(A Pilot and Research Based Project Supported by

Royal Netherlands Embassy,

Monitored by Indian Institute of Management Ahmedabad

and Implemented by 
Blind People's Association, Ahmedabad)

Volume-1,    Issue-7
July '06

BLIND PEOPLE'S ASSOCIATION (INDIA)
An Organization working for the development, provision of equal opportunity and access to all persons with disabilities

(This Newsletter is an  Effort to Sensitize Peer NGOs, Government Officials, Students, Educated Masses and General Community on the Issue of Mental Health)

Editorial Team

Dr. Bhushan Punani
Executive Director 

Mrs. Nandini Rawal
Project Director

Mrs. Vimal Thawani
Project Manager

Mr. Dharmendra Kumar Jena
Project Coordinator

Mr. Bharat Joshi
Asst. Project Coordinator

Alcohol and Drug Dependency-  

A Leading Cause of Mental Illness

This complied report is an effort to sensitize community on Alcohol and drug dependency, a leading cause of mental illness. This would be not only helpful to identification of symptoms but also helpful in solving this problem. It would also help the youth and community to over come problems of mental illness.

Substance abuse disorders (alcohol and drugs) forms one of the most significant behavior related problems the world over.

 

Behavior related problems account for 34% of all disability (World Bank1993) and include problems such as violence, malnutrition, tuberculosis, diarrhea disease, sexual transmitted diseases, motor vehicle accidents and other unintentional injuries. Substance abuse can directly lead to a range of physical, psychological and social problems as well as indirectly contribute to disability.

 

Alcohol and tobacco abuse together account for the most important causes of preventable deaths and disability in the world. It is important to distinguish between alcohol on the one hand and hard drugs and tobacco on the other hand. If consumed within limits and with common sense, alcohol does no damage to the health; on the other hand tobacco and hard drugs are dangerous irrespective of the amounts in which they are used. Thus the prevention of alcohol abuse may focus on strategies to educate people about “sensible ”drinking. On the other hand, strategies for combating tobacco or hard drug abuse should focus on complete on complete abstinence.

 

How to Identify Persons with Drug Dependence:

1)           Loss of interest in daily Routine Activities

2)           Loss of appetite and body weight.

3)           Unsteady gait.

4)           Unclear Vision

5)           Slurring of Speech

6)           Nausea, Vomiting and Body pain

7)           Drowsiness

8)           Acute Anxiety, Depression

9)           Changing mood and Temper

10)         Emotional Detachment

11)         Impaired Memory and Concentration

Responsible Factors For Drug Dependency And Alcohol

                                                                                                                 

1)          Unemployment                          Living away from home.

2)          Migration to cities                      Relaxed parental control

3)          Alienation from family.               Early exposure to drugs

4)          Leaving school early                  Broken homes

5)          Large urban environment           Areas where delinquency is common.

                                                                                                                 

Approaches to Prevention of Drug Dependency:

 

Approaches to prevention of drug dependence should have realistic aims. Eradication of drug problem in a short time is likely to lead to policies that are unrealistic and self-discrediting. Changes in culture attitudes and alteration in relevant aspects of the environment can be brought about only slowly.  

 

Legal Approach:

 

The legal control on the distribution of drugs when effectively applied has been and remains an important approach in the prevention of drug abuse. Controls may be designed to impose partial restriction or to make a drug completely unavailable. Legislation restricting of prohibiting advertisements that directly or indirectly promote use of tobacco and alcohol has been increasingly common in recent years. The antismoking measures are suggested:

 

1)    Prohibition of the sale of tobacco products to minors.

2)    Prohibition of smoking in public places

3)    Restriction on the sale of cigarettes from automatic vending machines

4)    Prohibition of smoking in schools and other places frequented by young people.

5)    Prohibitions of cigarette advertising at times and in places and ways calculated to ensure its maximum impact on youth.

6)    Establishment of mandatory public health education on health consequences of smoking.

Educational Approach:

 

Educational approaches to the prevention of drug use and drug related problems have been used widely and its result is also good. The educational programs for school children and public information campaigns on electronic media and other ways of media. The message should be clear and unambiguous to the intended audience and come from credible source of information. The message should also provide specific advice rather than general and as far as possible the information should be new to the communities and should be capable of provoking discussion or action. To be effective, such approaches should be regarded as a part of integrated plan of action involving other strategies. We can also be convincing the school children by this way:

Smoking and Drinking before the age of 18 is crime

Ø     Advertisement that show beautiful and athletic people smoking and drinking are selling a lie.In    fact, those who smoke or drink are much sicker than others look much worse.

Ø     You can have fun and party without drugs or alcohol. Having a good time means enjoying     

        friendship and activities without the need to take any substances.

Ø     If you know someone who is smoking or drinking be a friend and suggest to them they      

        should stop.

Ø     You will use up all your money on alcohol or tobacco; imagine what you could do with that 

         money if you stopped.

Ø     Why do you need a drug to be yourself? Stop and you will really be yourself.

Community Approach:

The non-medical use of drugs individually as well as in its mass appearance involves a complex interaction of drug, man and his/ her environment, including social, economic and cultural, political, and other elements of varying character and strength. The rapid changes taking place at the present time in relations between individuals groups and nations are also reflected in a rapidly changing pattern of drug abuse. There should be a strong emphasis on action at the community level to prevent drug abuse. Initiating preventive interventions in the community brings preventive action to the level of people’s every day lives and actions and contributes to emphasis on strengthening primary health care. Action at the community level is also important since communities often bear the main burden of dealing with the harmful use of drugs and drug related problems. 

A popular approach to the prevention of drug abuse is provision of alternative activities, which may help to prevent drug abuse- e.g. teen centers providing activities attractive to the adolescents who might otherwise drift in to drug taking subculture. Such activities include the establishment of groups or organization interested in athletics, sports, music, public policy.

 

Treatment:

 

Treatment cannot take place unless the individual attends for treatment. He must come to terms with the possibility of a life without drug taking. Unfortunately, drug takers, as a rule, have little or no motivation to undergo treatment. Alcoholics tend to deny that their consumption is abnormal; others openly defend their habits. Long term treatment is only a medical problem, but needs cooperation of psychologist and social workers. The steps of treatment include;

a.     Identification of drug addicts and their motivation for medication.

b.    A person needs hospital-based treatment in some cases.

c.      Counseling and follow up based on clinic or hospital or home visit.

d.    Rehabilitation.

Rehabilitation:

 

The rehabilitation of former drug user regardless of age, is in most of the cases a long and difficult process. Relapses are very frequent. Success of the treatment necessities the adoption of the mature and realistic attitude by the local community and the avoidance of panic, moral condemnation and discrimination. Facilities for Vocational training and sometimes the provision of sheltered workshops and community based rehabilitation approaches are useful in rehabilitation and help to prevent relapse.

 

Government Initiatives

Drug demand reduction activities have been the Ministry of Health and Family Welfare and the Ministry of Social Justice and Empowerment, Government of India. The Ministry of Health lays emphasis on treatment, including community-based treatment, health educational activities, and human resource development through training of health personnel in substance abuse management throughout the country. It established 5 treatment centers in 1988. Seventy-two treatment centers were initiated at medical colleges and district hospitals. Training curricula for resource staff have been developed by the Ministry of Health and Family Welfare. In the early

1990’s, it was estimated that 1000 medical officers had been trained over 32 courses across 18 institutions (Ray 1998). The feedback from such evaluation however, has been the inadequate clinical exposure, inadequacy of adequate resource material, and inadequate exposure to community-based services. The Ministry of Social Justice and Empowerment funds more than 341 NGOs throughout the country for counseling, rehabilitation and aftercare. It also supports public awareness campaigns, media publicity and community-based action in the area.

 

Gujarat is the only state at where alcohol sale is totally prohibited and minors cannot be sold any tobacco items.

 

Voluntary Sector initiatives for Prevention

 

The Ministry of Social Justice and Empowerment fund many of the nongovernmental organizations working in the area of substance abuse. Their brief has been to carry out rehabilitation and aftercare, awareness building, and prevention. A few have carried out successful and innovative approaches for demand reduction and rehabilitation. The many voluntary originations have started counseling services to addicted people and also their family members and also conducting community sensitization programs through Wall painting, Picture shows, Puppet shows and Street platy etc. Many of them have started School Mental Health Program. The Voluntary Sector could be effective machinery for Alcohol prevention the society.  We could also bar owners to insist that customers do not drink and drive home, or teach them ways of politely but firmly refusing to serve alcohol to someone who is clearly drunk.  Adolescence is the time when many people first try smoking or drinking. This is the most important time to provide education on how to avoid smoking and prevent drinking problems. The some messages we can use in school and colleges. The youngsters believe that smoking cigarette is a fashion and it would make good impression on others. We can convince the school students in this way.   

 

 The Fact we can’t ignore.

• 2/3 of patient’s earning spent on alcohol

• 40% of alcoholic patients contribute no money to family

• Heavy loans

• Absenteeism, sickness, unemployment

• Loss of productivity

• Cost of treatment

• Costs of material damage

• Cost of monitoring

• Cost of treatment

• Emotional distress to families.

References :

1.     Where there is no Psychiatrist by Dr. Vikram Patel

2.     A Model Project of NIMHANS on Drug and Alcohol

3.     Prevention  and Social Medicines by Perk and Perk

Report Prepared By: Bharat Joshi

Project Coordinator, Mental Health Project,

Blind People’s Association

If you wish to contribute any article for the E-newsletter, or would like to comment   on the newsletter please do contact us at the following address. 

Contact

Blind People’s Association
Jagdish Patel Chowk, Surdas Marg,
Vastrapur, Ahmedabad Gujarat-380015

Phone-91-79-26304070, 26305082
Email- bpaindia@satyam.net.in
vimal_2005@sancharnet.in

Website- www.bpaindia.org

 

Integration of People with Mental Disorder Into Community Based Rehabilitation Model 

(A Pilot and Research Based Project Supported by

Royal Netherlands Embassy,

Monitored by Indian Institute of Management Ahmedabad

and Implemented by 
Blind People's Association, Ahmedabad)

Volume-1,    Issue-8
August '06

BLIND PEOPLE'S ASSOCIATION (INDIA)

(This Newsletter is an  Effort to Sensitize Peer NGOs, Government Officials, Students, Educated Masses and General Community on the Issue of Mental Health)

An Organization working for the development, provision of equal opportunity and access to all persons with disabilities

Editorial Team

Dr. Bhushan Punani
Executive Director 

Mrs. Nandini Rawal
Project Director

Mrs. Vimal Thawani
Project Manager

Mr. Dharmendra Kumar Jena
Project Coordinator

Mr. Bharat Joshi
Asst. Project Coordinator

Mental Illness:  Changing Scenario from Illness to Disability:

For any individual; mental, physical and social health is vital stand of life that is closely mingled and deeply interdependent. As understanding of his relationship grows, it becomes ever more apparent that mental health is crucial to the overall well being of individual’s societies, countries. Physical health has gained more importance and people are not conceptually clear about the mental health. But we cannot deny that healthy body needs healthy mind. A person with healthy mind should be able to think clearly, should be able to solve various problems faced in life and should enjoy good relation with every one and should feel spiritually at ease and bring  happiness to others in the community.

 

But we cannot deny that healthy body needs healthy mind. A person with healthy mind should be able to think clearly, should be able to solve various problems faced in life and should enjoy good relation with every one and should feel spiritually at ease and bring happiness to others in the community. This is called healthy man. We always say that mind and body are separated; in reality they are like two side of the coin. We cannot think they are not dependent on each other. Just as physical body can fall ill, so too can the mind. This is called mental illness. Mental illness is not a personal failure. It does not happen only to other people. We people could not openly speak about cancer few years ago and at present we feel shame to share information about the HIV/ADIS patients. The barriers are gradually broken down. The people with mental illness are at same position and excluded.

 

Mental illness includes broad range of problems. For most people mental illness thought of as an illness associated with severe behavioral disturbances such as violence, agitation and sexually inappropriate. The entire family is suffered along with these people. The burden of mental illness is increased day by day, 450 million people are suffering from mental illness in the world, and every year 20,000 people are added in SCHIZOPHRENIA” in Gujarat. It is estimated that depression is second ranked disabling diseases in 2020. The Mental Health Act, 1987 enables to provide good and effective treatment to the “Persons With Mental Illness” in the country; even these stigmatized people are restricted to avail treatment at some extent. These hospitals are stigmatized as Ganda Ni Hospital. The need is aroused that recognition should be given; special programs and policies should be framed for the mental illness. The most controversial question is “Persons With Disability Act, 95” included mental illness as disability, on other side it seems as illness. The question is if it is considered as illness at that time the treatment comes. The disability never is curable. If it is curable, it cannot be called disability. So could we say Mental Illness is a Disability?  We need to understand the term of disability. The term of disability is explained in following way.

If a person is unable to perform an activity, which he is otherwise expected to perform because of his illness that is termed as disability.  We need to understand the term of disability in very elaborative way.

Unfavorable Condition: Conditions that functions as a medium for diseases, accidents or environmental agents.

Cause: A disease, Accidents or Environmental agents.

Impairment: Any loss or abnormality of psychological, physiological or anatomical structure or function, which may result from a disease, accident, or other genetic or environmental agents.

Disability: Any restriction or lack of ability to perform an activity to perform an activity in the manner or within the range considered normal for a human being.

Handicap: A disadvantage for a given individual that limits or prevents the fulfillment of a role that is normal (depending on age, sex, and social and cultural factors) for that individual. 

How can be said mental illness as a Disability?

Unfavorable Condition: Loss of the job, financial constraint, anxiety about the family members

Cause: Chemical disturbances in brain

Impairment: Impairment in mental functioning and social relationship.

Disability: Inability in doing self-care activities, maintaining social relationship enable to perform his/ her social roles.

Handicap: A man feels neglected, disrespected, socially isolated and considers himself an economic burden of his family.  

The psychiatric disorders do not cause any physical disabilities, but they restricted the person from doing many activities, which he is otherwise supposed. The mental illness is not fully curable but it is controllable. The Disability in psychiatric illness can be dynamic. It can depend on the person’s phase of illness, the treatment status and social support he/she has. Mainly the psychiatric disability is called social disability because a person has to perform certain social roles in the society. 

 

1.   Self care : A person with mental illness may not look after his own self care. He may not  maintain good hygiene, even he is not bother about his appearance.

2.   Interpersonal Relationship: Mentally ill person is not able to develop new relationship or maintain healthy existing relationships with others even not with his family members. His way of relating with people may be distorted and deficient.

3.   Family: Mentally ill person is not able to maintain healthy atmosphere at home as before. He may be totally withdrawn or hostile towards other family members. He is also economically dependent on family members and not able to bear financial responsibility of the family. On other side he makes unnecessary expenses. He may not be able to fulfill the emotional and sexual need. The server mentally ill persons may not able to take major decisions and family also not involving in decision-making.

4.   Social: The mentally ill persons is not able to participate in social activities like festivals, marriages and occasions. He may avoid them actively. Some times he may not be aware of the social events happening around him in his village, state or the country. He will not be involved in any recreational or religious activities.

5.   Occupational: due to the mental illness, a person may remain absent very frequently. He may not be able to concentrate in his work for long time. His quality work is also degraded. Sometimes he may lost the job or loss incurred in business.  

Conclusion:  

The PWD Act 1995 has already included mental illness as disability. The Indian Disability Evaluation and Assessment Scale(IDEAS) have been developed for disability assessment of persons with mental illness. The Persons with Mental illness are eligible to avail all the Rights and Social services as per mentioned in PWD ACT1995. These people are no longer to stand in queue and wait for turn. The Social Defense Department of Govt. of Gujarat has included Mental illness in social security benefits in new G.R. recently. The new format includes mental illness with other disability.     

  Article written by : Bharat Joshi (Project Coordinator) 

 References:  

  1. WHO Health Report 2004

  2. Towards Comprehensive Community Based Rehabilitation Programs By Geert Vanneste

  3. Foundations and Techniques in Psychiatric Rehabilitation By: T. Murli, B. Sudarsan, K.P. Shivraman Nair, A.B. Taly

  4. Fundamentals of Mental Health Education by Shashi Prabha Sharma

Report Prepared By: Bharat Joshi

Project Coordinator, Mental Health Project,

Blind People’s Association

If you wish to contribute any article for the E-newsletter, or would like to comment   on the newsletter please do contact us at the following address. 

Contact

Blind People’s Association
Jagdish Patel Chowk, Surdas Marg,
Vastrapur, Ahmedabad Gujarat-380015

Phone-91-79-26304070, 26305082
Email- bpaindia@satyam.net.in
vimal_2005@sancharnet.in

Website- www.bpaindia.org

Integration of People with Mental Disorder Into Community Based Rehabilitation Model 

(A Pilot and Research Based Project Supported by

Royal Netherlands Embassy,

Monitored by Indian Institute of Management Ahmedabad

and Implemented by 
Blind People's Association, Ahmedabad)

Volume-1,    Issue-9
September '06

BLIND PEOPLE'S ASSOCIATION (INDIA)

(This Newsletter is an  Effort to Sensitize Peer NGOs, Government Officials, Students, Educated Masses and General Community on the Issue of Mental Health)

An Organization working for the development, provision of equal opportunity and access to all persons with disabilities

Editorial Team

Dr. Bhushan Punani
Executive Director 

Mrs. Nandini Rawal
Project Director

Mrs. Vimal Thawani
Project Manager

Mr. Dharmendra Kumar Jena
Project Coordinator

Mr. Bharat Joshi
Asst. Project Coordinator

SELF HELP GROUP - A KEY PLAYER IN REHABILITATION OF PERSONS WITH MENTAL ILLNESS

“United we stand, divide we fall”

Self-help is not a new concept in any rehabilitation programs. Self-help is very old concept, which began from the time of the industrial revoluation. The labour unions are good examples of self help movement. The labour unions were formed to access good facilities in industrial settings and safe guard their rights. Later on, this concept was shifted to societal change and recently very famous for micro finance or small income savings group. But the self help group can be defined in a following way:

 

“ Collectives of voluntary associating persons who share a common problem; they are self –governing, rely on the experimental knowledge of their members as the group’s source of authority, provide mutual assistance which is at least emotional support and do not charge fees (Borkman). The other synonym is support group, mutual help group. The group is in demographic nature and involves self governance, equal rights within group process, leadership at the pleasure of the group, free expression of thought and feeling, independence from external rule.

 

The self-help group members are key role players in any rehabilitation program. But the scenario is totally different in mental health. In other rehabilitation program, the self-help group members might be direct stakeholders or directly affected. In mental health, the family members or carers are self-help group members who are stake holders and directly affected. The sickness of any family member might disturb the routine of every day life. The physically ill people are deeply involved in getting well and setting back into previous role.

 

The situation is totally different in mental health, a person is not ready to accept he is mentally ill and consequently he denies the treatment. His behavior not only disturbs his family, the community is also disturbed as well. The carers are treated with hostility instead of gratitude. The carers have lots of burden like financial problems, disruption to household and social functioning and feelings of anguish; guilt is also associated with it. They also face lack of information about disorder and its medication, lack of resources and treatment facility. These are very real obstacles to make rehabilitation process smooth. The carers can get good services and information through self-help group. This group could be formed in different ways; one group is of people who have  recovered from mental illness and the other could be group of family members. It is very difficult to form groups of patients who have recovered. The family members, friend or relatives are survivors could be organized for their own benefits.

 

Benefits that can be derived from participating in support groups are directly related to the needs of the family members. The active participation in self-help group activities is more beneficial to the family members to overcome the problems and to gain more knowledge and information. While, they are working in a group, their problem solving capacity is also increased, they get practical advice Suggestions are also provided, they find  new ways to think, to feel and deal with life experiences and their attitude is totally changed. This also helps family members to decrease negative thoughts, emotions. The group is involved in many activities at several levels.

 

The first and foremost activity of the self help group member is to provide an emotional support to the family members. This activity of the self help group is based on the first and immediate need of the family members. The family members need relief from their emotional disturbance. Once, they join the group the “WE” feeling is generated. This is one kind of mutual support to family members, which would be helpful to

bullet

Decrease negative emotions

bullet

Form friendships

bullet

Re-establish social networks

bullet

Decrease isolation

bullet

Establish hope

bullet Focus on positive role of models within the group.

The second activity can be information provision for the family members. The group should be involved to upgrade information regarding medicines, treatment, and welfare services of person with mental illness. The group can arrange educational programs with the helpful of mental health professionals. For example, guest speaker can deliver a lecture about their particular field of interest or video shows can be shown to the group. This would be helpful to the family members in 

bullet

Increasing knowledge of mental illness

bullet

Increasing knowledge of services available

bullet

Enhanced problem solving capacity

bullet Increased coping skills.

The group can be actively involved in advocacy activities. The self help group members have the ability to influence legislation and the direction of community services as well as acting influence the attitudes of people who lack intimate contact with mentally ill. The group has passed various stages of information gathering and emotional support and they have the caliber to fight for their rights. The recent trend is of community mental health care. But in developing country like India, it is very difficult to access basic medical treatment at grass root level.

 

Case study : A Self help group has been formed in Limbdi, actively involved in advocacy activity in one of our project areas in Gujarat (India). The visiting Psychiatrist comes for the medical treatment from Mental health Hospita,l Baroda twice a month. Due to hectic schedule of mental health hospital, he was not be able to comeand due to this, the family members were not able to get medicines. This happened three or four times. The Self Help Group members discussed this problem in their group meeting and presented to the Psychiatrist. Psychiatrist presented the same problem to the RMO and Civil surgeon and requested them to provide medicines to follow up cases not to the new cases. The influence of self-help group worked and now they avail the medicines on behalf of Psychiatrist. The sustained community mental health care could be possible with the active involvement of self help group.

 

The most important function is to develop and maintain links with professionals. Sometimes the professionals can also form the groups. So the group can match its needs and programs with the professionals groups.

 

Like any intervention, support groups are not without their weakness. 

 

bullet

Over dominance of leader and or members

bullet

Level of training

bullet

Possibility of the creation of dependency on the group

bullet The expression of intense feelings which can overwhelm members.

Conclusion :

 

Carers play a vital role in our mental health system, yet their needs

are often overlooked. Taking care of a relative who has a serious mental illness can place a serious strain not only on the primary carers but also friends and other members of the family. Health professionals and non profit organizations are in excellent position to facilitate the development of self help groups. 

 

The self help group members of Kapadwanj, presented role play on 

Mental Illness on occasion of 

world flag day 14th Septmeber,05 

at Tagore hall, Ahmedabad.

 

 Report Prepared By: Bharat Joshi

Project Coordinator, Mental Health Project,

Blind People’s Association

If you wish to contribute any article for the E-newsletter, or would like to comment   on the newsletter please do contact us at the following address. 

Contact

Blind People’s Association
Jagdish Patel Chowk, Surdas Marg,
Vastrapur, Ahmedabad Gujarat-380015

Phone-91-79-26304070, 26305082
Email- bpaindia@satyam.net.in
vimal_2005@sancharnet.in

Website- www.bpaindia.org